Prostate Cancer Support Group - Richmond, Va

Meeting Dates - 3rd Thurs. each month - Time 7:00 PM - No July Meeting - The Dec. date will vary - Call for details - Peter C. Moon Phd. at 804-346-4407 between 7 - 11:00 PM - Location - Ridge Baptist Church, 1515 Eastridge Road Richmond, VA 23229
Vet

Rva Prostate Cancer Support Group

www.rvaprostatecancersupport.org

For details Contact - Peter C. Moon Phd. at 804-346-4407 between 7 - 11:00 PM
Location - Ridge Baptist Church, 1515 Eastridge Road Richmond, VA 23229
Meetings are in the fellowship hall Bldg - at the back of the parking lot.

In good faith, this website was created to furnish you with helpful information. Nevertheless, no one who contributes or posts information to this website makes any guarantee regarding the information provided. Any decisions that you make regarding your health should be made in consultation with a qualified healthcare provider.


Affiliated with Us-TOO International Prostate Cancer Education & Support Network
Us Too International Other Support Groups Facts and Stats Emerging Treatments Articles Videos Links Complementary
Alternative Treatment Sources
Clinical Trials Advanced Prostate Cancer ADT Active Surveillance Prostate Cancer Detection Peter's Notes Herbs and
Alternative Treatments
Resources
Women Spouse Partner Page Past Meeting Page Flyer

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There is no July Meeting
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RVA US-Too - 6:30 PM - Aug 15, 2019 Meeting.

We start at 6:30 PM - Doors opened about 6:00 PM.

Meeting Topic:

August is OUR PotLuck Supper Meeting.

On August 15 Jerry Deans will help us understand how to deal/lower stress from what life throws at US.
This fall I plan to have several talks On Gene Mutation And PCa.

Please bring a heart-healthy dish for all to share. This is your chance to meet and talk to the men and their significant Others who are in this life's adventure they would rather not have. Find out first hand how they feel about treatments, lifestyle changes and the other quality of life issues you may not have thought of.

See you Thursday.

Please bring your ideas - All are welcome.
Meeting Location - Ridge Baptist Church, 1515 Eastridge Road Richmond, VA 23229

Meetings are held in the fellowship hall Bldg - at the back of the parking lot
For more details Contact - Peter C. Moon Phd. at 804-346-4407 between 7 - 11:00 PM

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The Power of Advanced MRI in Prostate Cancer

Us too Warriors,
Dr Yu of VCU will speak at on PCa MRI guide Biopsy at Lewis Ginter Botanical Gardens - Check the website to sign up on Jul 16.
4:00 p.m. Seminar guests are welcome to walk through the gardens free of charge
5:00 p.m. Registration check-in and light refreshments served -- 5:30-6:30 p.m. Presentation

Peter

Click on Our Link To Register on Line

MRI
or Go To
https://www.vcuhealth.org/events/events-details?ceid=2e6db2db-00f2-4aaf-be62-e1c9f4b3e059
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Vet

Us Too Warriors
This is well worth your time. Many of RVA UsToo went last year. We are fortunate it is this close to us. I will be going again this year with my brother I hope. Will I see you there?
All the best peter. (I have just registered)

Many more speakers - Many topics and breakout sessions...
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Comments from last year's Virginia conference:

“The Conference was AMAZING!!! Truly, I’m feeling much better as it’s a stressful journey. Being empowered with information, support and the right questions will help me more than you’ll ever know.”

“The speakers were very good, taking the time for questions at several points in their presentations. Fantastic job. Looking forward to the next one.”

“Great conference - Best I’ve been to in last 24 years.” Peter Moon, PhD, UsTOO support group leader, Richmond, VA



Click on Our Link for FULL Details and Registration Here
Registration
or Go To
https://Nov2conf.eventbrite.com
https://www.eventbrite.com/e/prostate-cancer-today-living-well-choosing-wisely-virginia-2019-tickets-63024264271

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Us Too Warriors,
Dr Wallace who is behind these efforts is trying to shape this process to the needs of men with PCa. It may take about five minutes of your time if you can do it. Dr Wallace has been kind enough to speak to our group several times on radiation and seeds treatments for PCa.

Take my survey: https://www.surveymonkey.com/r/837YZWL

I hope you respond by expressing what you think of these online efforts to meet your needs that will help..

Peter

Click on Our Link

Link: Survey
or Go To
https://www.surveymonkey.com/r/837YZWL

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Project Healing Waters Fly Fishing
REEL RECOVERY is a national non-profit organization that conducts free fly-fishing retreats for men recovering from cancer. Go to the link below for the details & application Information.

October 21-23, 2019 Graves Mountain Lodge & Rose River Farm in Syria, VA

For more information, contact Reel Recovery at:
info@reelrecovery.org or call 800-699-4490
Website - http://reelrecovery.org/

Click on Our Link to get the Project Healing Waters Application
Project Healing
Project Healing
or Go To
http://reelrecovery.org/application-phw/
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Us Too warriors,
Go to the website below to sign up for Bicalutamide and Metformin treatment for recurrent Prostate cancer and to see the requirements to qualify.
All the Best Peter

Click on Our Link

Link: Sign UP
or Go To
https://ccr.cancer.gov/Genitourinary-Malignancies-Branch/marijo-bilusic

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See below if you have not been treated and/or on active surveillance and your cancer is limited and local.

This issue of Prostatepedia is devoted to focal therapies. Interest in focal therapy is fueled by the promise of cancer control with fewer side effects than are seen after radiation or radical prostatectomy. From the patient perspective, this is certainly an attractive option. As a result, we have seen the development of an increasing list of approaches to focal therapy.

Click on Our Link to Read more
Not Treated
or Go To
http://rvaprostatecancersupport.org/PDF/Prostatepedia_V4N8_April2019-1.pdf
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Us Too Warriors,

At our Feb 2019 Meeting we had an Informative Program on ED from
"Peak Performance For Men".
This is A New, Proven and Successful Treatment for Erectile Dysfunction.

Focused Linear Compression Therapy (FLCT) protocol is scientifically proven to increase blood flow to the penis and optimize erections, sensitivity, and sexual performance. FLCT is a series of short comfortable treatments to the penis using focused linear compression sound waves that create long lasting results for erectile dysfunction and Peyronie's Disease by increasing blood flow and nerve tissue. The sound waves repair aged blood vessels, stimulate growth of new blood vessels and remove decades of micro-plaque. This procedure opens the blood vessels in the penis which is essential for a firm, rigid erection which also stimulates the nerve endings to greatly enhance sensitivity. This procedure is non-invasive, completely pain free with no side effects, no surgery, no use of drugs and no downtime. This breakthrough revolutionary technology is the only viable option for men with erectile dysfunction or men looking for better sexual performance with long-lasting results and no harmful side effects whatsoever.

Click on Our Links

Link: Freq Ask Questions

Link: Website
or Go To

Freq Ask Questions - http://rvaprostatecancersupport.org/PDF/Peak Performance001.pdf
Website - https://www.peakperformanceformen.org/


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Us Too Warriors,

Please find below more Clinical trial information on the effectiveness
of SBRT treatments for PCa. This is a follow up on the information from September's
meeting by Dr. Cuttino.


All the Best,
Peter

Per the Requests for the Power Point Presentation
"The September 20th meeting"

Dr. Lauri Cuttino, VCUHS Assoc. Prof. of Radiation Oncology at VCUHS and the Medical Director of Radiation Oncology at the Sarah Cannon Cancer Center at Henrico Doctors' Hospital, who discussed Stereotactic Ablative Radiotherapy for Prostate Cancer and gave a Power Point Presentation: Treatment of Primary and Limited Metastases.

To Read the Power Point Presentation in PDF format
Click on Our Link

Link: PDF
or Go To
http://rvaprostatecancersupport.org/PDF/Prostate SABR no video 92318.pdf

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More Clinical trial information on the effectiveness of SBRT treatments

To Read the Clinical trial information
Click on Our Link

Link: SBRT
or Go To
http://rvaprostatecancersupport.org/PDF/SBRT Phase 2 Multicenter Trial of Heterogeneous.pdf

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RVa Us Too Warriors, If you are on social media,
You can spread awareness of PCa by adding the posts on the link below to your Social pages.


This is a long list of social media posts which you can use on your FACEBOOK pages for September which is Prostate Cancer Awareness month.

Just cut and paste onto your page! (ONE at a time)

If you do one every few days - this will really help to get the awareness out there!

Please let me know if you are going to participate. We can really make a huge impact here
if we all take a minute to post at least a few times this month.
Email - Terri Likowski TerriL@ustoo.org

Click on Our Link
Link: Post
or Go To
http://rvaprostatecancersupport.org/PDF/Social Posts for September 2018.pdf
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Hampton University Proton Therapy Institute
HUPTI - 40 Enterprise Parkway - Hampton, VA 23666 - Phone - 877.251.6838

Proton therapy is a cancer treatment option most commonly used for localized cancer, meaning it may treat cancer that has not spread to other parts of the body. Though popularly used for prostate and breast cancers, it has become a standard form of care for numerous cancer types. Many patients, both young and old, have utilized proton therapy as an effective cancer treatment option.

Click on Our Link to visit their Website

Link: HUPTI
or Go To
http://www.hamptonproton.org/information-on-proton-therapy/

Click on Our Link to see their latest TV Spot

Link: TV Spot
or Go To
https://www.dropbox.com/s/1oep0ax9095hu6c/HUPTI%20TV%20Spot%20-%20Stuart%20Goodman.mov?dl=0
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Us Too International - Hot Sheet 2018 - May 2018

This monthly Issue is loaded with good Information:
Example:
Survival with Brachytherapy - Based Radiotherapy or Radical Prostatectomy
in High - Risk Localized Prostate Cancer.

To Read The Hot Sheet - Click on Our Link
Hot Sheet
or go to:
http://www.ustoo.org/PDFs/HotSheets/HotSheet052018.pdf
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We are pleased to announce the first Us TOO support group call
for the women behind the men affected by prostate cancer.


Because prostate cancer is a couple's disease, the woman is often subject to her own concerns in addition to those she shares with her partner. A Forum for Her will be a regular call series which will focus on women and offer peer-to-peer support to address these concerns.

A Forum for Her is a regular call series (and invite-only Facebook group) which focuses on women and offers important peer-to-peer support. So far, the calls have been going great and will continue to expand.

As group membership grows and we become more comfortable with each other, we will be looking for volunteers to lead smaller group calls. If you would like to volunteer to help lead a small group call, please email me at terril@ustoo.org or call 877-978-7866.

(Your involvement would not require too much time or effort beyond the typical call length of about an hour. We would only be looking for you to lead calls, not come up with information, materials, or topics.)


In order to address very specific experiences, these calls are open only to wives and female partners of men affected by prostate cancer.

Please note that space is limited - Contact me at terril@ustoo.org or 877-978-7866 to reserve your spot and to get the call-in information!
Terri Likowski - Program Director/Support Group Services
Us TOO International - Prostate Cancer Education and Support Network
2720 S. River Road, Suite 112 - Des Plaines, IL 60018
877-978-7866 - terril@ustoo.org
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New Program:

Saturday, November 3

Prostate Cancer Event to Address Erectile Dysfunction and Incontinence After Treatment

The Chicago Area Event will Feature a Special Presentation on Erectile Dysfunction and Incontinence
After Prostate Cancer Treatement

Register to attend in person or watch the online webcast with live audio and video from the event.

Presenters for the Chicago Area Event:

* Dr. Jeffrey Albaugh, Board Certified Advanced Practice Urology Clinical Nurse Specialist, Board Certified
Sexuality Counselor, Director of Sexual Health at NorthShore University HealthSystem and at Jesse Brown VA Medical Center
and member of the Us TOO Board of Directors.
*Dr. Brian T. Helfand, Urologic Oncologist, Prostate Cancer, Laparoscopy at NorthShore Medical Group.
*Others to be announced.

NorthShore University HealthSystem Skokie Hospital
9600 Gross Point Road
Sharfstein/SH Rooms A, B and C
Skokie, IL 60076
10:00 am - 3:30 pm

Click on Our Link to Register Now! Or contact Terri at 877-978-7866 or terril@ustoo.org.
Register
or Go To
https://www.mainstreamchicago.com/ustoo-pathways-chicago-registration

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A Big Thank You to Jerry
Capturing the Magic

How do you capture the Magic? The magic I’m referring to is the strength and hope that passes from one to another when we find our tribe...when we find people who have lived through a particularly difficult experience that we are being forced to endure.

The Board of Directors and staff of Us Too were recently trying to find a concise statement that captured the unique value of Us Too. What happens in a support group or over the phone when a newcomer shows up full of fear and teetering on the edge of resignation after getting the news from his doctor “I’m sorry to tell you this but you have prostate cancer "or “The treatments did not work and your cancer is now metastatic”. Those words and the overwhelming feelings they elicited in me still reverberate deep in my soul.

Many of you know what it is like to face your mortality or that of a loved one diagnosed with some kind of cancer or disease that strips you of your sense of control and your fantasy that you will live forever. “This is not part of my plan. Why is this happening to me? What do I do with this diagnosis and this fear I am feeling?

This is the juncture in people’s lives when Us Too support groups are most valuable. But how do you put into words the magic of human compassion, strength and courage that passes from one to another when we are at our lowest and someone says “This is not a death sentence. You have important treatment and lifestyle choices to make. We can help you survive and navigate this experience. You are not alone in this struggle. “

As the Board and staff searched for the right words the following statement emerged:

Us Too helps men with prostate cancer learn to fight this disease. The power of Us Too is in helping men and those who love them, transform resignation into determination and fear into Hope. On the journey to beat prostate cancer?...Us Too.!!

I have seen and talked to so many men who came to a meeting downhearted and left uplifted and hopeful. I was one of those men. We all agreed the statement captured the essence, the Magic of Us Too.

I just finished Cyberknife treatments for a metastatic prostate cancer nodule in my lower left lung at Georgetown University Hospital. My Us Too friends helped me find the facility that was the fifth in the world to get the Cyberknife machine that would track my breathing. The Pulmonologist who placed the markers in my lung that allowed the machine to “see” the area of treatment, invented the procedure.

I give thanks for my Us Too group and the 200 plus groups across the nation and around the world that are taking the fear out of prostate cancer. I am also thankful for your prayers and encouragement through which I have continued to grow deeper in my faith in God and humankind. Through your past contributions you have been part of the wonderful exchange of hope...the Magic, that takes place at Us Too meetings all over the world. I invite you to join me in contributing to this worthy cause as I walk with hundreds of others in Chicago on Sunday September 9th. Please click on the link below to go to my fundraising page.

RVA Us Too Warriors, I hope you will be able to support Jerry generously as you have in the past to
keep The "Us Too" Headquarters working to help more men in the USA and around the world. As a group, we
have donated about $3000 dollars a year to help Jerry walk in a good cause and if you have not you
should go to our website and look at the Hot Sheet - the international headquartered in Chicago puts out
each month and send out over the internet to help men. September is national Prostate cancer month.

Click here to go to Jerry's fundraising page:
Jerry Deans
or Go To
https://ustoo.rallybound.org/seablue-prostate-walk/JERRYDEANS
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Read the article on our Articles page:

What It’s Like to Be Part of a Prostate Cancer Support Group

Advocacy - We speak with two specialists from a prostate cancer support group about the ways this
experience empowers men and their loved ones.

Stigma continues to surround men’s health in general, and prostate health in particular.
from Us TOO’s support group open up about the ways an organization like theirs can give
members a bedrock of information — and hope.

Click on Our Link to read more

Support Group


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The US Too "Hot Sheet"
The Hot SHEET highlights the latest in treatment strategies.

The monthly newsletter, the Hot Sheet, highlights the latest in treatment strategies as well as emerging treatments. The Hot SHEET is distributed free at chapter support group meetings, and is available in PDF on the Us TOO web site.

To Read The Hot Sheet - Click on Our Link
Hot Sheet
or go to:
http://www.ustoo.org/Read-the-HotSheet-Newsletter
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Prostate Cancer Drugs

On this webpage you will find information and links for all available prostate cancer drugs, including:
androgen deprivation, chemotherapy, hormone therapy, immunotherapy and palliatives for advanced
prostate cancer. The drugs can take many forms including oral, intravenous, injection, and implant.
We have done our best to compile the latest information, but be sure to consult with your doctor before
entering into any drug program. If you see anything missing or information in need of updating
please email - ustoo@ustoo.org.

To Read and print this Handout - Click on Our Link

Drugs

or go to
http://www.ustoo.org/Prostate-Cancer-Drugs
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Life Extension Magazine

How to Reverse Markers of Prostate Cancer.

Despite prostate cancer being the second leading cause of cancer death in men, a raging debate has ensued as
to whether men should have annual PSA blood tests. The scales are tilting in favor of Life Extension®’s
multi-decade campaign to educate men about the importance of regular PSA screening. Not only are there proven
ways to reverse rising PSA levels, but breakthrough treatments can enable safer diagnosis and curative treatment
without the side effects associated with conventional surgery and radiation.

To Read The Articles - Click on Our Link

Life Extension Magazine

or go to:

http://www.lifeextension.com/Magazine/2016/6

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